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Living that salty POTS Life

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I have debilitating POTS. Here you’ll find resources and things I’ve discovered while navigating Postural Orthostatic Tachycardia Syndrome (POTS).
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Resources

Resources to help understand POTS.

 
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A great resource site for people with forms of dysautonomia
Dysautonomia International: Dysautonomia Awareness, Dysautonomia Advocacy, Dysautonomia Advancement
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A great resource site for those trying to learn more about POTS
Standing Up To POTS
 
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My favorite blog by a POTsie!
MUSINGS OF A DYSAUTONOMIAC
 
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A blog about living with POTS
All Things Tachy
 
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A blog from a girl trying to navigate the world with POTS
(mis)adventures of a POTSie
 
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A recorded webinar explaining dysautonomia, the umbrella term for POTS
"Dysautonomia" - Jeffrey Brinker, MD
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This is a UK POTS resource, but the information is often more up to date than anything I find elsewhere.
PoTS UK
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Helpful tools for managing POTS.
The Dysautonomia Project
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Articles and Videos

Articles and videos from around the world talking about POTS

 
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POTS on the rise after COVID
A condition called POTS rose after covid, but patients can’t find care
 
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Video about POTS and its rise since COVID
'I feel useless': Disease that causes young woman to pass out constantly may be on the rise amid COVID
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Video about how POTS can be debilitating.
POTS: How does it affect your life?
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Mayo Clinic Video explaining POTS
Postural Orthostatic Tachycardia Syndrome (POTS) - Mayo Clinic
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A video with doctors explaining POTS
What is POTS?
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An original paper attempting to identify a diagnostic tool for POTS.
Postural Orthostatic Tachycardia Syndrome (POTS): Assess, Diagnose, and Evaluate for POTS Treatment (ADEPT)
 
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A paper out of Cananda on POTS
Canadian Cardiovascular Society Position Statement on POTS
 
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Christina Applegate's daughter revealed she has POTS which gave us a little media coverage for a while.
What is POTS? Postural Orthostatic Tachycardia Syndrome, explained.
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Another Applegate article. I guess we have to take what we can get!
Christina Applegate's 13-year-old daughter reveals POTS diagnosis
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FORBES article about Olympic swimmer Katie Ledecky and her POTS battle
Katie Ledecky Has POTS, Postural Orthostatic Tachycardia Syndrome
 
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Some common myths about POTS
Common Myths About POTS
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We all know we're not getting taken seriously enough…
Nurse advocates for better support and treatments for POTS illness
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Article on athletes with POTS
They’re young and athletic. They’re also ill with a condition called POTS.
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John Hopkins Article about POTS
Standing up to POTS
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Wearable Tech

Devices I use to help manage my POTS symptoms.

 
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I pinned the article about this tech, but I've been wearing it for a few months now.
Lumia Health | Track Blood Flow to Your Head for Chronic Conditions
 
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I love Visible. It helps me manage my energy so much!
Visible - Activity tracking for illness, not fitness.
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I'm actually wearing this new device.
New in-ear device promises to predict fainting, help understand dizziness and brain fog
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Supplements

Electrolytes, Salts, and More
 
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These are great for keeping in the car or a backpack.
Vitassium FastChews, Electrolyte Tablets, 60ct
 
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Sea salt to the rescue!
Rescue Salt
 
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Flavored salts
LMNT Watermelon Salt Electrolytes 30-Count
 
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Keep it salty
Fine Ground Celtic Sea Salt – 16 Ounce Bag
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I stick with the sugar free but that’s just me
Liquid I.V. Hydration Multiplier Sugar Free
 
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Hydration. Hydration. HYDRATION!
LMNT Zero Sugar Hot Chocolate Mixer - 12ct
 
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If the flare is so bad you can't even mix your own electrolytes, something like this is great because it's just done for you. Hydration is key even when you don't want to drink.
LMNT Sparkling Electrolyte Drink 12-Pack
 
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Again, if you're flare is so bad you can't even deal with mixing your electrolytes, these are a great buy.
Pedialyte Strawberry Electrolyte, 12x500ml
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Another great brand for getting your hydration in.
Raspberry electrolyte drink mix
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A whole new way to get electrolytes! Wiiiild!
HydraPatch®

What's In My Bag

The POTS items that are in my bag if I happen to have the audacity to venture out of my house.

 
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Just in case my watch dies or we need second readings. This is just one of those things that makes me feel better to have.
Wellue Bluetooth Pulse Oximeter with APP
 
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A folding cane is the perfect thing to have tucked in a bag for an emergency. I generally use my chair when I'm out, but it's great to have this in case I need it.
Gel Grip Folding Cane
 
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Because I overheat so easily, I have a neck fan with me all the time to help me regulate my temperature.
Portable Neck Fan, Hands-Free Bladeless
 
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I keep an ice pack or two with me to help me cool down when I’m having a flare up. These are perfect.
25 Pack Instant Cold Packs for Injuries
 
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These are really helpful for nausea
Prince of Peace Ginger Chews, 4 oz. - 2 Pack
 
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I was really surprised at how quickly and easily these got cold and how long they lasted!
Dr.Chilly™

POTS Awareness

My favorite products for raising POTS awareness.

 
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Love this sweatshirt!
Stand Up for Pots But Not Too Quickly Hoodie
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Stickers are my favorite!
Funny Dysautonomia Sticker
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If you know, you know…
People of the Salt Die Cut Sticker
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I'm such a sucker for funny stickers
POTS Syndrome Sticker
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