I have debilitating Postural Orthostatic Tachycardia Syndrome (POTS). I've collected resources, articles, and the things that I'm using to help manage my symptoms, all in one place, to make it easier for you to save spoons researching what might help...
Sections
6
Resources
Articles and Videos
Wearable Tech
Supplements
What's In My Bag
POTS Awareness
Resources
These are my favorite places to visit for accurate information, the latest research, and new studies.
A great resource site for people with forms of dysautonomia
A great resource site for those trying to learn more about POTS
Standing Up To POTS
My favorite blog by a POTsie!
MUSINGS OF A DYSAUTONOMIAC
A blog about living with POTS
All Things Tachy
A blog from a girl trying to navigate the world with POTS
(mis)adventures of a POTSie
A recorded webinar explaining dysautonomia, the umbrella term for POTS
"Dysautonomia" - Jeffrey Brinker, MD
This is a UK POTS resource, but the information is often more up to date than anything I find elsewhere.
PoTS UK
Helpful tools for managing POTS.
The Dysautonomia Project
Articles and Videos
These are one off articles from around the world talking about POTS.
POTS on the rise after COVID
A condition called POTS rose after covid, but patients can’t find care
Video about POTS and its rise since COVID
'I feel useless': Disease that causes young woman to pass out constantly may be on the rise amid COVID
Video about how POTS can be debilitating.
POTS: How does it affect your life?
Mayo Clinic Video explaining POTS
Postural Orthostatic Tachycardia Syndrome (POTS) - Mayo Clinic
A video with doctors explaining POTS
What is POTS?
A paper out of Cananda on POTS
Canadian Cardiovascular Society Position Statement on POTS
Christina Applegate's daughter revealed she has POTS which gave us a little media coverage for a while.
What is POTS? Postural Orthostatic Tachycardia Syndrome, explained.
Another Applegate article. I guess we have to take what we can get!
Christina Applegate's 13-year-old daughter reveals POTS diagnosis
FORBES article about Olympic swimmer Katie Ledecky and her POTS battle
Katie Ledecky Has POTS, Postural Orthostatic Tachycardia Syndrome
Some common myths about POTS
Common Myths About POTS
We all know we're not getting taken seriously enough…
Nurse advocates for better support and treatments for POTS illness
Article on athletes with POTS
They’re young and athletic. They’re also ill with a condition called POTS.
John Hopkins Article about POTS
Standing up to POTS
Wearable Tech
Devices I use to help manage my POTS symptoms.
I pinned the article about this tech, but I've been wearing it for a few months now.
Lumia Health | Track Blood Flow to Your Head for Chronic Conditions
I love Visible. It helps me manage my energy so much!
Visible - Activity tracking for illness, not fitness.
I'm actually wearing this new device.
New in-ear device promises to predict fainting, help understand dizziness and brain fog
Supplements
Electrolytes, Salts, and anything else I'm taking to help with symptoms.
These are great for keeping in the car or a backpack.
Vitassium FastChews, Electrolyte Tablets, 60ct
Sea salt to the rescue!
Rescue Salt
Flavored salts
LMNT Watermelon Salt Electrolytes 30-Count
Keep it salty
Fine Ground Celtic Sea Salt – 16 Ounce Bag
I stick with the sugar free but that’s just me
Liquid I.V. Hydration Multiplier Sugar Free
Hydration. Hydration. HYDRATION!
LMNT Zero Sugar Hot Chocolate Mixer - 12ct
If the flare is so bad you can't even mix your own electrolytes, something like this is great because it's just done for you. Hydration is key even when you don't want to drink.
LMNT Sparkling Electrolyte Drink 12-Pack
Again, if you're flare is so bad you can't even deal with mixing your electrolytes, these are a great buy.
Pedialyte Strawberry Electrolyte, 12x500ml
Another great brand for getting your hydration in.
Raspberry electrolyte drink mix
A whole new way to get electrolytes! Wiiiild!
HydraPatch®
I've been taking these gummies to help with the brain fog. I love the taste and the convenience.
The Modern Creatine Brand
What's In My Bag
The POTS items that are in my bag if I happen to have the audacity to venture out of my house.
Just in case my watch dies or we need second readings. This is just one of those things that makes me feel better to have.
Wellue Bluetooth Pulse Oximeter with APP
A folding cane is the perfect thing to have tucked in a bag for an emergency. I generally use my chair when I'm out, but it's great to have this in case I need it.
Gel Grip Folding Cane
Because I overheat so easily, I have a neck fan with me all the time to help me regulate my temperature.
Portable Neck Fan, Hands-Free Bladeless
I keep an ice pack or two with me to help me cool down when I’m having a flare up. These are perfect.
25 Pack Instant Cold Packs for Injuries
These are really helpful for nausea
Prince of Peace Ginger Chews, 4 oz. - 2 Pack
I was really surprised at how quickly and easily these got cold and how long they lasted!
