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Rare Childhood Diseases Awareness Support, Learn & Share Hope
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Bianca Cummings
Raising awareness can change lives. This list highlights rare and lesser-known diseases that affect children with resources, awareness items, and support tools for families, caregivers, and advocates.Each item links to education, empathy, and empowe...
Sections
4
 
Neurological & Developmental Disorders
 
Genetic & Metabolic Disorders ✨ Awareness for rare inherited or metabolic childhood diseases.
 
Autoimmune & Inflammatory Childhood Conditions
 
Cardiac & Circulatory Disorders

Neurological & Developmental Disorders

Awareness for brain and nervous system conditions in children.
 
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A delicate purple awareness bracelet supporting girls with Rett.
Rett Syndrome Bracelet
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Beyond Batten” (charity resource).
A new children's book is helping families talk about rare, fatal Batten disease
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Connect families to The Moyamoya Foundation.
Donate
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Helps children with neurological symptoms or anxiety.
Weighted Blankets & Wraps
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Noise-canceling headphones and gentle fidget tools.
Staying Safe with Seizures
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Genetic & Metabolic Disorders ✨ Awareness for rare inherited or metabolic childhood diseases.

Awareness for rare inherited or metabolic childhood diseases.
 
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Etsy seller supporting MSUD families.
Maple Syrup Urine Disease: What It Is, Symptoms & Treatment
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Educational and practical dietary guide.
The Complete PKU Cookbook: Managing Guide
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Strong Hearts, Strong Kids
Pompe Disease Awareness: Clothing, Shoes & Jewelry
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Promote early detection and empathy.
Wilson's Disease
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Encourage donations or reading about early diagnosis.
National Gaucher Foundation
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Read ,support and share
Helicobacter pylori Infections
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Autoimmune & Inflammatory Childhood Conditions

Raising understanding for under-recognized autoimmune issues in children.
 
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Be informed and understand so you can help.
Juvenile Myositis
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Link to an official educational page.
Kawasaki Disease A guide for families and carers
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Raising understanding
What It Means to Be a Highly Sensitive Person (HSP)
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Illustrated children’s book that explains chronic illness with hope.
LUPUS = Lift Up, Persevere, Use Strength
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Direct support to advocacy and education initiatives.
Autoimmune Encephalitis Alliance: Home
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Cardiac & Circulatory Disorders

 
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Simple awareness item for families.
SADS Awareness Month
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Direct link to a global support organization.
PPHNet – The Pediatric Pulmonary Hypertension Network.
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Rare vascular diseases in kids.
Vasculitis Awareness
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Gentle distraction tool for pediatric heart patients.
Large Print Easy Color & Frame - Calm
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rare heart conditions in children.
Congenital heart defects in children - Symptoms and causes
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Understand and suport
Congenital heart defects in children - Symptoms and causes
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