Living with ALS (Amyotrophic Lateral Sclerosis or Lou Gehrig's Disease)
As one of my mom’s caregivers, I wanted to create a list of the ALS caregiving products, mobility aids, respiratory equipment, comfort items, and daily living tools that have genuinely helped her. These recommendations come from her physical therapists, occupational therapists, speech-language pathologists, social workers, doctors, and our own experience caring for her at home. We have tried many products that did not work for her, so I am only including items she has actually used and found helpful. ALS is a progressive disease, and a person’s needs can change over time, so not every item will be appropriate for every stage or every patient. However, everything included on this list made a meaningful difference for my mom at some point in her ALS journey. Sending lots of love to all persons with ALS and caregivers of people with ALS. I am hopeful that there will be a cure one day. ***As with anything on Benable, I earn a very small royalty from purchases made here, but I wouldn't recommend anything I haven't bought for my own mom. This platform just seemed like a great method for sharing recommendations! Any money I earn here goes right back into supporting my mom***