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What I Keep Around as a Sickle Cell Mom
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items ❤️ A Little About Sickle Cell Disease
Sickle cell disease (SCD) is an inherited blood disorder that affects the red blood cells. It is not contagious—you are born with it.
Normally, red blood cells are round, soft, and flexible, which allows them to...
Map
❤️ One of the first things we reach for during a pain crisis.
When my 7-year-old son is having a sickle cell pain crisis, a heating pad is one of the first comfort items we use. Gentle warmth can be soothing when he's experiencing pain, especially i...
Heating Pad- Bring on the Heat
Something we keep in our routine for our son. Beet juice naturally contains nitrates, which may support nitric-oxide production and healthy blood flow.
Now, I personally cannot stand drinking beet juice straight! 😂 But somehow my son loves it just a...
R.W. Knudsen Family, Organic Beet Juice
Water bottle 💧
“Drink your water, drink your water!” — me, approximately 47 times a day. 😂
Keeping a water bottle handy is a must in our house. With sickle cell, staying hydrated is especially important, so I’m always making sure my 7-year-old has...
Water Bottles
One thing I always like to keep nearby is a sketchbook. My son loves to draw, sketch, and color, and honestly, it can be such a great little distraction when he’s dealing with a minor pain crisis. Sometimes giving his mind something creative to focus...
Sketch Book By Creatology™
This little plush is shaped like a sickle cell, and my son loves to squeeze it. It’s become a comforting little companion for him, especially during those tougher moments. Sometimes having something soft to hold and squeeze gives him a simple way to ...
Sickle Cell Disease push toy
Spider-Man is one of my son’s favorites, so of course he has several Spider-Man blankets! One small one is always packed and ready to go with us, especially in case we ever have to make an unexpected hospital trip. And then there’s the Spider-Man bla...
Spiderman Blankets for comfort
LEGO 🧱
Legos are definitely a must-have in our house! My little guy loves putting them together, and I’m always amazed watching him build. He can look at the directions, figure out what goes where, and build it all by himself without asking for hel...
LEGOS for the WIN
This is one of those things I always want to have on hand as a sickle cell mom. Knowing my son's temperature is important, especially when he isn't feeling well. With his sickle cell disease, a temperature above 100°F means we don't wait—we head to t...
iHealth PT3-Black No-Touch Forehead Thermometer
This is one bag I never want to travel without. I keep everything together so if we’re away from home or an unexpected situation comes up, I’m not scrambling to find what we need.
Inside, I keep his sickle cell travel letter, which explains his cond...
Sickle Cell Travel & Medication Bag
A regular thermometer is one of those things I feel like every mom should have within easy reach. In our house, they're practically everywhere!
I want to be able to quickly check his temperature whenever he doesn't feel like himself. You can never b...
Thermometers
He actually won this one for his drawing depicting sickle cell, which makes it extra special to us. We’re also intentional about screen time—during the school week, he doesn’t use it at all. We mainly bring it out for hospital stays, when he needs a ...
Apple iPad Pro Tablets
Liquid I.V. Hydration Multiplier 💧
💧As a sickle cell mom, hydration is something I’m always thinking about. Dehydration is not good for someone with sickle cell disease because it can bring on a pain crisis. I like keeping Liquid I.V. packets on h...
Water Hydration Packets