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My Chronic Illness/Spoonie Essentials
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items All the tools and things that I use to help me manage my chronic illnesses! (pots, gastroparesis, hypermobile ehlers danlos, smas, etc) 🥄 Spoonie essentials!
Sections
5
Allergic To Gravity Essentials (POTS)
Bendy B*tch Essentials (hEDS)
Hot People Tummy Problems Essentials (Gastroparesis, SMAS)
Neurodivergent Essentials!
Medical device essentials (central line/GJ tube)
Allergic To Gravity Essentials (POTS)
These are my favorite tools and essentials that I use on a daily basis that help me manage my POTS! Tracking my HR, staying cool, compression garments, and more!
My go to when I’m really hot or having a migrane! Blocks light and is cooling and refreshing.
ONLYCARE Migraine Relief Cap, Odorless Ice
Reusable water bottle that also has a built in pills of the week container! I am always forgetting things like taking my meds due to brain fog from my conditions. This makes it super easy to remember to stay hydrated and drink water, as well as to ta...
7Grids Medicine Box Plastic Portable Water Bottle Pill Boxes Organizer Drinking Bottles for Outdoors (Blue)
Great way to stay cool during the hot summer! Love this for my POTS to help keep me cool since I can’t regulate my body temperature properly. I love that it comes with a bag to keep it cold when you’re out, super handy!
Neck Cooling Tube with Insulated Bag Blue
Having a little portable fan that I can just clip onto my hat is a great way to stay cool during the summer/hot days by the beach/pool etc.
Clip Hat Fan
Compression socks, one of my summer POTS essentials!
Women's Compression 2pk Knee High Socks - All In Motion™ White/Gray 4-10: Moisture Wicking, Arch Support
I have the Apple Watch Series 6 in rose gold! I use this everyday to track my heart rate (bc of my POTS) as well as my oxygen levels!
Apple Watch Series 10 GPS 42mm Rose Gold Aluminum Case with Light Blush Sport Band - M/L
Vitassium, liquid iv, Buoy, all electrolyte additive products great for people who need extra salt and electrolytes due to Dysautonomia/POTS/etc.
Liquid I.V. Hydration Multiplier Vegan Powder Electrolyte Supplements - Strawberry Lemonade - 0.56oz/10ct
I keep my handicap placard in my clear holder! I find that this is a great way to preserve my handy cap tag from wearing out! The hook is convenient for hanging up with ease and I feel like it has more protection for the summer heat to prevent meltin...
LotFancy Handicap Placard Holder, Disabled Parking Placard Protector Sleeve with Large Hook, Pack of 2
Bendy B*tch Essentials (hEDS)
My essentials for my bendy hypermobile self as well as tools I use to help with my chronic pain!
An Ehlers Danlos essential! I love this pillow because it supports my joints to help me prevent subluxations and dislocations when sleeping/resting! LOVE this pillow!
Full Body Pillow Cover- U-Shaped Soft Cotton Replacement Pillowcase, Removeable with Zipper for Pregnancy/Total Body Pillows by Hastings Home (Pink)
I cannot live without my heating pad! I recommend getting a L or XL one so you can heat a wider area (my back for me). I exist 24/7 on a heating pad in the winter/when it’s cold bc that cold makes my pain flare up. This isn’t my exact one but same id...
Pure Enrichment Deluxe Heating Pad, Mauve
My favorite pink knee brace to prevent knee dislocations and subluxations!
Adjustable Compression Knee Patellar Pad Tendon Support Sleeve Brace for Men Women - Arthritis Pain, Injury Recovery, Running, Workout
What I use to rub out some of my coat hanger/neck and back pain! The heat relaxes my muscles while the machine does its job. Be careful if you have sensitive (esp eds) skin!
Heated Massager
My go to KT tape! I have VERY sensitive skin and this is the only KT tape that my skin can tolerate it! It’s also my favorite color 💖 Perfect for keeping my joints and body in place during the summer when I don’t want to wear my thicker/bigger brace...
Kinesio Tex Gold Light Touch Tape 2in x16.4ft
Ring splints! These are super helpful for my hypermobile joints and fingers! The splints stabilize my finger joints minimizing pain and damage from my hypermobility. I don’t have professional splints I made my own. You can watch how I made mine: http...
Adjustable Swan Ring | Finger splint for EDS/Arthritis | Joint stabilization for Hypermobility | Mallet Finger | Swan Deformity | Silver
Any kind of Lidocaine product can be helpful for spot treating specific pain areas, offering some relief from chronic pain with the numbing effect it has! This one has a no mess applicator which makes application a little quicker & easier. I most...
Aspercreme Lidocaine with No Mess Applicator - 2.5 fl oz
I heavily rely on my tens unit as one of my pain management tools! My pain management doctor was able to have one sent to us for use.
INSMART TENS Unit Rechargeable Muscle Stimulator EMS Dual Channel with 10 Reusable Electrode Pads 36 Modes for Back Neck Pain Muscle Therapy Pain Management Pulse Massager
Hot People Tummy Problems Essentials (Gastroparesis, SMAS)
Hot people having tummy problems is widely known. Here are some of my favorite things I use to help keep me prepared/to treat my nausea/motion sickness!
I always keep an emesis bag on me at all times, as a girly w hot girly tummy issues, I’d much rather be prepared and have these than not! (Gastroparesis/SMAS essential!)
Walgreens Nausea Bags
As someone who gets very motion sick, these would definitely come in handy! I haven’t tried these yet, but I’ve heard they’re great!
Motion Sickness Glasses Relieve Carsickness, Car Sickness Glasses, Relieve Carsickness Airsickness Seasickness Glasses, Anti Nausea Vertigo Glasses
Not a long term permanent solution, but tums can be a great temporary fix/aid for those who need that antacid to calm down their system. I take prescription omeprazole to keep my acid reflux/excess bile under control!
TUMS Extra Strength Assorted Berries Antacid Chewable Tablets - 96ct
Seabands for nausea relief! These use a pressure point in your wrist that is supposed to help alleviate at least some of your nausea/motion sickness. This works for me most of the time, but not always.
Seaband Nausea Relief Acupressure Wristbands - 2ct
My gi doctor was the first person to recommend tummy drops to me! Personally I love sucking on any kind of mint/peppermint, but ginger can also be super helpful with curbing nausea!
Natural Peppermint Tummydrops, 33 Drops, Certified Made with Organic Ingredients by Oregon Tilth
Something that changed my nausea game was getting a prescription for a Scopalamine patch I put behind my ear and change out every 2 days! This is an over the counter option for a stick on nausea relief day to day and during travel/motion sickness!
Walgreens Motion Travel Patches
I keep this at my house for guests if need be and I keep a mini one in my purse, JUST IN CASE. I never WANT to go in public, trust me.
Poo-Pourri Before-You-Go Lavender Vanilla and Citrus Toilet Spray
I sleep with a bed wedge every night so that I am elevated. I do this to minimize any reflux while I sleep, and so it’s easier for me to get up in the morning bc of my POTS.
Bed Wedge Pillow with High Density Foam for versatile support by Sweet Home Collection® - 22" x 24" x 7.5"
Neurodivergent Essentials!
Tools and essentials that I love and use to try and help minimize/prevent meltdowns due to being overstimulated
(Loop dupe) Noise cancelling reusable silicone ear plugs! As someone who is neurodivergent I really rely on my ear plugs to prevent overstimulation especially during meals, outings, and sleep! I have misophonia as well so I ALWAYS have a pain of ear ...
Loop Quiet 2 Ear Plugs - Ultra-Comfy Reusable Noise-Reducing Earplugs for Sleep, Deep Focus, Travel, Sensitivity | Flexible Hearing Protection | Customizable Fit | 24Db (Snr) Noise Reduction-Pink - Walmart.com
As someone who tends to sensory seek by pulling hangnails, biting my nails, chewing my cheek, picking at my skin, etc. when I got my little ouchie, it really helped adjust and be able to get that pain stem without causing any damage. Has been REALLY ...
Little Ouchies Pain Fidget
I have heard that weighted blankets can be super helpful for stress and regulation! I personally didn’t do that well with my weighted blanket, so I gave mine away but still wanted to share bc I know it’s a helpful tool for many neurodivergent people!
7 lb 40" x 60" Weighted Blanket Cotton Light Pink by Bare Home
Medical device essentials (central line/GJ tube)
This is a bunch of things that I use to better manage my medical devices! Tools and essentials I like to have around for my GJ tube and my Hickman Central Line!
I use a cart exactly like this in my bedroom as my “medical cart”! I keep all of my central line supplies and general chronic illness essentials by my bedside so I can do my med care from my bed on days that I can’t leave my bed!
3 Tier Metal Utility Cart White - Brightroom™: Rolling Storage Trolley with Wheels, Powder-Coated Steel, 31.3" Height
You can never have too many alcohol wipes when living with a central line! I also use these to occasionally clean around my tube as well!
Alcohol Swabs - 200ct - up&up™
This is the exact hand sanitizer that I keep in my med cart and throughout my house for when I need to touch my tube or central line. As someone who has had sepsis I don’t play with bacteria!
McKesson Premium Hand Sanitizer Gel with Aloe, Spring Water Scent, 18 oz, 1 Count, 1 Pack
These are the saline flushes that I use on my central line whenever I’m doing an infusion of any kind.
Sodium Chloride Injection Normal Saline Flush Syringe 10mL
These are the heparin flushes that I use on my line to keep it flowing nicely! They never use heparin on me in the hospital but I am religious with it at home! Nothing like needing labs and not getting blood return from my line.
Bd Posiflush Heparin Lock Flush Syringes
I love using Tubie pads with my GJ tube! It helps to avoid any leakage from my tube getting on my clothes, and to avoid the buildup of granulated tissue!
Boho Feeding tube pads | AMT button pads | Mic-key button pads