I developed PN immediately after my third endometriosis excision. These are things that I have used or still use to help me. Plus some awareness merch!
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Items that I use for my PN (non-Rx)
Supplements
PN Shirts
Medications
Disability Attorney Rec
Items that I use for my PN (non-Rx)
This lidocaine gel is meant for external use, and it doesn't burn at all!
Good Clean Love Relief Gel w/ 4% Lidocaine
This is the mattress topper that I have. I've gone through two of them existing from a bed. It's the only thing soft enough for me to stand.
Serta® Soothing Cool® 3-Inch Gel Memory Foam Mattress Topper
This lidocaine cream is easier to find (Walmart), and it’s $10. On the vulva though, depending who you are, it may burn. On the anus, it does not burn however. This is the same lidocaine cream you would get if prescribed (not the same as lidocaine je...
Equate Hemorrhoid Relief Cream with 5% Lidocaine Topical Ointment
I have two Purple seat cushions, this one and another one. I’ll link that one too. It does help me. This one fits the seat better. Without it, I cannot even remotely sit in a car. The good news is that it is returnable if it doesn’t work out for you.
Purple Royal Seat Cushion for Car/Office
This is the other Purple cushion that I have. This one is softer but it is too large for my car seat. It does slide off my leather seat. It is the one I am currently using.
Purple Ultimate Seat Cushion for Gaming
These are great for any type of genital or anal pain. They don’t stay cold long, but I alternate them out!
FOMI Care Hemorrhoid Gel Bead Ice Pack
I can’t wear pads. I can’t wear tampons. If I spot or bleed at all (my ovaries are medically suppressed), I wear Knix period underwear. They aren’t painful like pads. Even the regular underwear has NO FLAPPY GUSSET! IT IS COMPLETELY SEWEN DOWN! Perfe...
All Underwear - Knix
I have used a bidet for a decade… long before I had PN. It’s medically necessary for me, as is a squatty potty (I’ll link that also). I don’t have a warm water line close to my toilet, so cold water it is. If you have rectal burning with BM’s, this d...
SAMODRA Non-Electric Cold Water Bidet
Barrier cream with menthol in it, so it provides a very soothing cooling sensation. I use it on my hemorrhoids, my bum with PN. It is an ointment, so it can get messy, but you can also use it on vulva or wherever else too. I like this brand but Calam...
Medline Remedy Olivamine Calazime Skin Protectant Paste Cream, Used with Dry Chapped from Diaper Rash, Incontinence, Dermatitis, Psoriasis, Burns, Bites, White, 4 Oz
Soothing barrier cream with menthol. Good for hemorrhoids, anal pain, diaper rash (also good for babies), vulva, etc. helps with pain
Calmoseptine Ointment by Calmoseptine
Just the handle to the dilators.
Dilator Handle
I prefer to use these for my severe rectal pain, tightness, and spasms from the PN over their actual rectal one’s. The rectal ones cause my pain due to my endometriosis and adenomyosis with a retroverted uterus. I will also link the rectal ones also ...
Small Dilator Set of 4 - Intimate Rose
These may help with obturator internus pain with PN (and without), rectal pain, etc. They no longer serve me but may serve you. I must use lidocaine on my vulva to use anything vaginally. Do what is best for you.
Intimate Rose’s lube sucks btw. Use...
Pelvic Wand With Vibration
May help with pelvic floor pain due to tightness and trigger points. Obturator pain. Rectal pain. These no longer serve me but may serve you.
Intimate Rose Pelvic Wand
While I have only linked the small sizes of dilators, both vaginally and rectally, they have all different sizes. Single ones and full sets also.
Small Anal Dilator Set - Sizes 1 - 4
I keep my oral meds in here in my purse. I love these things.
MEACOLIA 3 Pack Travel Pill Organizer
If you live in chronic pain, then you know what it is like to use a heating pad that doesn't get hot enough or you use it for so long that you can't feel the heat anymore. This one gets HOT! Hottest one I could find and I looked forever! I have two o...
Hottest Heating Pad
These are great. 10/10 recommend. They stay cold for quite a while, and they are very cold! I have pudendal neuralgia and these are very popular in the PN community! I also use them on other areas on my body, like my legs, because I have severe pain ...
This is the brand I buy. Highest mg I found when I started buying it
Liposomal PEA 1000 mg + Luteolin 100 mg, 60 Softgels
Great for multiple pain conditions. I’ve bought this brand for the last couple years.
FORCE FACTOR NAC 600 mg, 200 Veg Capsules
This is the brand that I buy this
Corllia Liposomal NAD+ 500mg Softgels
This is the brand that I buy
NatureBell Citicoline 500mg + Tyrosine 50mg
This is the exact brand that a subscribed to
Acetyl L-Carnitine 1500mg 100 Veggie Caps
Same brand I purchase
Qunol Magnesium 420mg, 180 Count Capsules
Tumeric is great for inflammation
Qunol Turmeric Curcumin 2250mg, 90 Veg Caps
Antioxidant
It’s part of the ETC. I don’t wish to teach this part of biochem to anyone lol. I’d like to forget it.
Qunol Ubiquinol CoQ10 200mg Softgels, 60ct
Vitamin D is also important for nerves. It is a fat soluble vitamin also, so you don’t want levels too high either. You want to strive for a blood level of at least 60 but not more than 100 ng/mL
Doctor's Best Vitamin D3 5000 IU, 360 Count
Vitamin E Is fat soluble so please do not take more than 180mg of it. Your body doesn’t excrete it in urine. Vitamin E is important for nerve function.
Vitamin E 180mg Supplement Softgels - 200ct - up&up™
Best fish oil ever! No fish burps. You can literally bite into the pill and it’s lemon lime flavor. If you burp, it’s lemon lime lol. I can sometimes find on eBay cheaper.
Orthomega 120 ct | ACI Medicine
Just pay shipping! $10
I keep doing the free ones. There are about three companies that do this!
Free Full Spectrum Hemp Oil
Another free CBD (full spectrum hemp) deal. Just pay shipping!
Free Daily Delight
More free full spectrum hemp oil. It $10 shipping. I got this one too! Tastes exactly the same as the Vena one!
Free Hemp
PN Shirts
Purple is the color for pudendal neuralgia
Tougher than PN Shirt!
Tougher than PN
PN- Pain is Real but so is Hope
Pain Is Real- Pudendal Neuralgia
Pudendal neurlagia awareness
Pudendal Neuralgia Awareness
Pudendal Neuralgia Awareness
Pudendal Neuralgia Awareness
Not a shirt, but it is a very cute mug.
PN Mug
Anyone with PN knows how sitting is impossible. It is a sitting disability.
We Stand Because We Cannot Sit- PN
Medications
Conditions that low dose naltrexone is used to help
LDN Research Trust
I pay $45 at my compounding pharmacy. 10mg BID, qty 60/mo.
Valium® (diazepam)
Baclofen 10mg- lidocaine 50mg suppositories! I also have them.
Chronic Pelvic Pain - CareFirst Specialty Pharmacy's Blog
Disability Attorney Rec
Nick won my case at the hearing level. I have a massive list of conditions, not just PN. He doesn’t take cases at the federal level and won’t appeal to appeals counsel, but he is as good as it gets.
“Many who know me don't even know what I do. I'm a...