As a medical mom to two boys with Duchenne muscular dystrophy, I’ve spent years testing products to find what actually works and makes life smoother for our family. This list includes our go-to mobility aids, accessibility tools, and everyday items t...
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6
Ostomy
G-Tube
sleeping supports and bedding
Mobility aids
Bathing and Showering
Storage and organization for supplies
Ostomy
These wipes make removing sticky ostomy products off with ease. Also these work great removing the dexcom G7 bloodsugar monitor!
Coloplast Brava - Adhesive Remover (Sting Free)
Another amazing medical adhesive remover
Esenta Sting Free Adhesive Remover Spray, 50 ml | Carewell
I have 2 of these, one for all my son' ostomy supplies and the other for my son' gtube and feeding supplies
4 Tier Stackable Plastic Storage Bins 23QT
These help keep things sterile and time i am changing an ostomy bag or other ostomy products
Disposable Nitrile Gloves, Blue, Powder Free
G-Tube
Makes G Tube feeding more mobile throughout the house
Drive Medical Economy Removable Top I. V. Pole, Chrome
This is the best formula for night feeds, my son finally is gaining weight
Osmolite 1.5 Cal / 8 fl oz Tetra / Case of 24 / 64837
Great to have on hand if the power ever goes out as an emergency back up.
McKesson Gravity Feeding Bag Set with ENFit Connector
This is the pump I use for my sons nightly feeds. So easy to use!
Moog Infinity Enteral Feeding Pumps
These are the bage we use with his feeds
Infinity Enteral Feeding Pump Bag Set with ENFit® Connector, 500 mL, Silicone, Non Sterile
These are great for around the g tube, to catch any leakage
McKesson Sterile Split Sponges, 2x2 in, 700 Pk
These are great for cleaning the gunkies off around the MIC-KEY button/GTUBE
This is a great way to help support my son when he is sitting up on the couch or in a chair.
Nestl Backrest Reading Pillow, Back Support Pillow with Arms, Shredded Memory Foam Bed Rest Pillow, Silver Gray - Walmart.com
The spry pillow is a must after any major surgery or for any child or adult that needs more support. These pillows are squishy and contour to your body shape to give you the best support. They are also have a germ, mold, and allergen barrier and ar...
Spry Recovery pillows
I love how durable and leakproof these are. They have saved my son's bed so many times from having to be completely changed. Especially helpful at night when an accident has happened.
50x PULP Incontinence Underpads 36x36 XXL
Mobility aids
This is a must when you have medical kids that cannot move themselves. This one of my favorite things I have for my 2 boys with DMD
HOME | The Perfect Lift
This a must with wheelchair bound kids and adults. Makes short transfers so much easier. I keep one in my van for when I need to transfer my son into the van for appointments.
YPCBYNBS 30" Wooden Transfer Board for Seniors
These are amazing. I put these anywhere my wheelchair bound kids sit and on there bed. Makes positioning them so much easier.
Positioning Bed Pad with Handles – Quick-Drying, Washable, Waterproof
These a removable foldable ramp. Great option for rentals
12' L Silver Spring Aluminum Multi-Fold Wheelchair Ramp
Another good ramp option for power chairs
ReadyRamp Home Access Ramp Kits
This would be so helpful transferring a child or an adult from bathroom to chair to vehicle. I love how this is portable and I take this with me when we travel.
Upgrade Electric Patient Transfer Lift Chair
Bathing and Showering
These are great for post surgery and a quick clean up in between showers or bath.
Scrubzz No Rinse Bath Wipes for Adults Bathing, Adult Rinse Free Bath Sponges - Disposable - 25 Pack
These have been a life saver since my son's spinal fusion surgery. They were extremely helpful the first month or 2 when it was extremely hard to get him to the bathroom. It also helped me not have to clean up his bed every time he had an accident ...
Assurance Unisex Stretch Briefs with Tabs, S/M, 34 Count
These hands down are life savers when you cannot give your child a real shower yet.
Trust me on this. This made a huge difference to help my son have fresh and clean hair after his surgery. We all know how quickly our hair gets grimy after a few days of no washing!
MONDAY Haircare Original Dry Shampoo SLS and Benzene-Free, 6.7 oz
This is probably one of the most used things in our home. Both of my son's use this almost every day.
Drive Medical Bathroom Safety Shower Tub Bench Chair - Shower Seat - Gray
Storage and organization for supplies
This is a quick and easy way to store and keep all my son's medical supplies organized and have easy access to them.
Quik Box Sport 4-Tier Stackable Storage Organizer
This is another great option for storing medical supplies and bedding. And this helps you optimize under the bed storage and space.
Under Bed Storage with Wheels, 2-Pack, 60L
I use these on my kitchen counter to keep all the medications and food related supplies for my son. I can quickly see what I need.
Sorbus Clear Stackable Storage Drawers, Plastic Storage Drawers with Handles for Laundry Room, Office, Closet, Desk, Home, Kitchen, Pantry, Bathroom, Room, Organization and Storage, 2 Pack Small Wide - Walmart.com
I love these carts. We use these all over our house. This is a great way to organize supplies and keep them mobile.
3 Tier Metal Utility Cart Black - Brightroom™: Rolling Storage Trolley with Wheels, Powder-Coated, Rust-Resistant