As a medical mom to two boys with Duchenne muscular dystrophy, I’ve spent years testing products to find what actually works and makes life smoother for our family. This list includes our go-to mobility aids, accessibility tools, and everyday items t...
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4
Ostomy
G-Tube
sleeping supports and bedding
Mobility aids
Ostomy
These wipes make removing sticky ostomy products off with ease. Also these work great removing the dexcom G7 bloodsugar monitor!
Coloplast Brava - Adhesive Remover (Sting Free)
Another amazing medical adhesive remover
Esenta Sting Free Adhesive Remover Spray, 50 ml | Carewell
I have 2 of these, one for all my son' ostomy supplies and the other for my son' gtube and feeding supplies
4 Tier Stackable Plastic Storage Bins 23QT
These help keep things sterile and time i am changing an ostomy bag or other ostomy products
Disposable Nitrile Gloves, Blue, Powder Free
G-Tube
Makes G Tube feeding more mobile throughout the house
Drive Medical Economy Removable Top I. V. Pole, Chrome
This is the best formula for night feeds, my son finally is gaining weight
Osmolite 1.5 Cal / 8 fl oz Tetra / Case of 24 / 64837
Great to have on hand if the power ever goes out as an emergency back up.
McKesson Gravity Feeding Bag Set with ENFit Connector
This is the pump I use for my sons nightly feeds. So easy to use!
Moog Infinity Enteral Feeding Pumps
These are the bage we use with his feeds
Infinity Enteral Feeding Pump Bag Set with ENFit® Connector, 500 mL, Silicone, Non Sterile
These are great for around the g tube, to catch any leakage
McKesson Sterile Split Sponges, 2x2 in, 700 Pk
These are great for cleaning the gunkies off around the MIC-KEY button/GTUBE
This is a must when you have medical kids that cannot move themselves. This one of my favorite things I have for my 2 boys with DMD
HOME | The Perfect Lift
This a must with wheelchair bound kids and adults. Makes short transfers so much easier. I keep one in my van for when I need to transfer my son into the van for appointments.
YPCBYNBS 30" Wooden Transfer Board for Seniors
These are amazing. I put these anywhere my wheelchair bound kids sit and on there bed. Makes positioning them so much easier.
Positioning Bed Pad with Handles – Quick-Drying, Washable, Waterproof
These a removable foldable ramp. Great option for rentals
12' L Silver Spring Aluminum Multi-Fold Wheelchair Ramp
