A curated list of products that help me care for myself 💖 while living with hEDS, POTS/dysautonomia, and MCAS — and that could help you too. These are the tools, supplements 💊, and supports I rely on to stay comfortable and nourished 🌿.
Sections
11
Electrolytes & Hydration
Food & Gut Support
Compression & Circulation Support
Mobility & Daily Living Aids
Energy & Rest
Pain & Topical Relief
Electrolytes & Hydration
Staying Staying hydrated and keeping your electrolytes balanced can make a huge difference in how you feel day to day. These drinks and powders help me manage dizziness, fatigue, and keep my body running a bit smoother. 💧✨ahead of hydration is super...
This is the most ECONOMICAL electrolyte blend I've found after 2+ years learning to manage my POTS. Does it taste good? Not really. I either add a packet to a glass of water and chug it or I do this: Use a 62 ish oz pitcher. Add 2 packets of TRIORAL. Add 1 15-20 oz bottle of seltzer water of your choice. My current favorite is the ICE brand. Shake ... Drink the whole pitcher in a day and you'll be at least the minimum of hydrated. This is MY RESCUE when POTS flares. I used it yesterday after not eating enough and getting a bad dizzy spell. Between that and reclining for 45 minutes, and eating a complete meal after, my episode calmed down.
TRIORAL Rehydration Electrolyte Powder WHO
So… when you have POTS I think you crave salt more. At least I do. These rescue salts are great for salt loading, flares, and general POTS maitenance. I put a pinch in my mushroom coffee some days! I like the subtle salt taste.
I also enjoy taking a...
Rescue Salt
I enjoy the taste and convenience of ROOTD. I can only have it occassionally at the moment due to recurring SIBO and management of IBS and the ingredient Stevia. If you tolerate Stevia, this is a great product to manage dysautonomia and easy to toss in your belt bag, purse, backback, or even pocket! I'd guess runners would appreciate this product, too.
Root'd
These flavorless electrolyte drops are great for light hydration support. My POTS tends to be calmer fall-spring and when I am managing my POTS with fewer electrolytes needs, this is great to drop in my purse or pocket to add to water or any other dr...
elete Electrolyte
I rotate through electrolytes because I seem to need more in the summer heat and I also get bored with flavors sometimes. I like the lemony lime versions myoxience puts out. My favorite summer treat with this is to mix a serving into16 0oz water in a metal cup and then freezing it until slushy or taking it out frozen and letting it get slushy. It's almost as good as an ...
Electrolyte Stix: 2.6 grams of Creapure® Creatine Enhanced With Electr
The price on microingredients is pretty reasonable. The citric acid upsets my stomach if I have a lot, so I use this one sparingly. It tastes good tho!
Nutrition can be tricky with hEDS, POTS, or gut sensitivities, but these foods, drinks, and gut-friendly supplements keep me nourished and help my digestion feel a little more manageable. 🥗💖
Protein packed snack or meal replacement. The price is more economical on the big jug of protein powder but the protein grams are 2 lower at 30 g per serving. I order the individual bottles for bad days and convenience but primarily use the powder to save money. My stomach, which has IBS and SIBO issues LOVEs when I mix two scoops with 16-20 oz filtered water, 1 packet trioral (also reviewed here), 1 tsp acacia powder and 1 tablespoon chia seeds. It can be a bit difficult to blend. If this is an issue for you, a bullet blender handles it easily. I just use a spoon and stir like crazy. Preferred flavor for me is chocolate. When I need a bit more fat, I'll add in a tablespoon of almond butter-the bullet blender is really helpful in this case!
For those who are vegetarian or don't tolerate most dairy, like me. OWYN is an absolute life-saver both for my POTS to keep my small meals more regular and for my IBS/SIBO management. I prefer the chocolate and No Nut Butter Cup flavors in the individual drink sizes and they pack a walloping 32g protein! Super important, especially for women in perimenopause or menopause.
My dietician recommended this product as I struggled through a SIBO antibiotic treatment and had lots of diarrhea. I now use it any time my stomach starts cramping. It usually corrects the situation in a few hours to 2 days. Amazing product.
Official Florastor® Website | #1 Selling Probiotic Worldwide
Mushroom Coffee doesn't exactly sound good to most people. I have had acid reflux, GERD, SIBO, IBS and over a year ago resigned myself to giving up “real” coffee except for once a week--and it has to be cold brew or espresso based to not kill my stom...
Mushroom Coffee for Focus and Immunity + Free Starter Kit
Current fave hot drink: pinch buoy salt, 1 tablespoon cosmic cocoa, 1 tablespoon everyday dose mushroom coffee, 17ml charlottes web cbd in oil mint chocolate, and a splash of oat milk. 🤤
Compression leggings, socks, and shirts help with blood flow and joint support — little helpers that make standing, walking, or moving around a bit easier for me each day. 🧦💪
LOVE LOVE LOVE Fun, seasonal, and beautiful designs. Great for POTS and my mild edema. They are a bit difficult to get on, but once they're on, they are super comfortable and stay put. I have several pairs now!
Crazy Compression
I received size medium for potential review. I think medium is a bit too small, especially when I was 170 at 5'6. I'm currently about 160 and it fits better but does bunch when going from seated to standing a lot. But! This belly band got me through an entire funeral in which I stood leaning on my cane. It helped manage what would have been AWFUL back pain without the assistance. So, I have mixed feelings on this one and would advise further research if you are interested. And! I do use it on days I know I'll be more mobile than usual. This also helps ease my suspected pelvic congestion symptoms and POTS symptoms.
Relieve Pain With Jelliebend-A Wearable Lower Back Hug
These fankas are my favorite compression leggings. They are expensive, so please look for discounts and participate in their rewards program. Their website can be glitchy—it’s better on a computer.
My Physical Therapist recommended a few medical gr...
hese are the tools and gadgets that help me get through everyday tasks without wearing myself out — from supportive shoes and braces to kitchen helpers that save energy. 🛠️🌿
My PCP recommended I purchase one of these because my right shoulder screams when I drive. This has really but down on the screaming. I can't imagine going back to not having one.
My awesome aunt sent this to me after I fractured my sternum in a car wreck. It is healing and soothing. Will definitely buy more for bruising/painful areas.
Arnicare Pain Relieving Gel | Arnicare for Pain Relief and Bruising
Charlotte's Web is a reputable CBD brand. It helps me wind down for bed or calm down when my generalized anxiety gets super high. The lemonbalm in the blend is soothing for my chronic pain and anxiety as well. Sweet, lemony taste. I usually take a ha...
Calm Gummies, CBD gummies for stress
Mint chocolate CBD drops with 17 mg CBD per serving. Love the flavor and usually blend half a dropperful into my Everyday Dose Mushroom Coffee for a more gentle wake up experience.
Current fave hot drink: pinch buoy salt, 1 tablespoon cosmic cocoa, ...
Charlotte's Web CBD Oil: 17 mg CBD/1ml
With SIBO recurrence I have to watch my food closely. These lollipops are moderately “safe” for me. I love the taste. Watermelon is my absolute fave but there seem to be fewer in the box. While I love all the flavors, I gravitate also to grape, mango and pomegranate. A serving is 2 lollipops at 45 calories and 8 gram sugar (organic cane sugar is used). Stevia upsets my stomach, so this is good in my case. They are a bit pricey but worth it to me.
Received for product review. Not greasy. Soothes chapped hands.
Skin Cream Natural Lavender Scent - 3.4 oz
Received for potential product review. This is great for my middle aged, dry, chronic illness skin. I use 1-3 x/week in the shower BEFORE using my regular face cleanser and make sure to moisturize well afterwards
Fruit Enzyme Scrub
There are days and nights I’m just too tired to wash my face. I keep one pkg by my bed and one under the bathroom sink. My skin thanks me
Neutrogena Day & Night Facial Cleansing Wipes, 3x25
EXCELLENT cooling spray for hot days, facial toner, deoderant refresher. I LOVE the stuff. Repeat buyer for years. Not too pricey either!
Rosewater | Rose Water Spray
2
Formulary 55 has the most delicious, cruelty-free, vegan, made in the US, and beautiful products. I was sent several for product review and this was one of them. The body oil soaks in easily and smells sagey and salty in a beautiful glass container. ...
When I felt like Crystal wasn't cutting it in 115 heat index weather, I grabbed Dr. Teals to try. I was happy to see this version with both magnesium and eucalyptus oil. It has a gentle eucalyptus scent (one of my favorite scents) and feels good goin... Very curious if you've tried it, what your experience has been? It's a fairly inexpensive gentle deodorant to test out if you're searching for a new one.
Dr. Teals Eucalyptus Deodorant Gift Set 2 Pack
These are so luxurious! The packaging is beautiful. The products I’ve tried are divine. I especially love their handsoap.
Formulary 55 makes excellent gifts — for others or yourself
Super relieved to have these this summer. These handy gel ice tubes freeze quickly and last 2-4 hours. They sweat in 100+ weather, which I like, extra cooling.
The colors are fun / neutral.
These get me through car rides, short errands, and quick b...
MED PRIDE Instant Cold Pack First Aid Kit (6 Count)
Vital & Medical Monitoring / Supplies
When I got my hEDS diagnosis I had no idea how many supplements I would end up requiring — and at multiple times of day.
I landed on this pill organizer after a 1 a day, and then a 2 a day just weren’t holding everything.
I currently hold 3-4 pill...
My PT taught me how to use KT tape for joint support to relieve chronic pain, stabiize mild sprains, and help return blood flow. I had no idea it can be used in so many ways. My skin is mildly sensitive and does fine with this product. I currently ha...
The Original Lucky Iron Fish® - Iron Supplement Alternative
I have malabsorption of many vitamins, including iron and it constipates me like crazy. Except for Blood Builder. It's the only iron I've found that doesn't mess with my stomach.
MegaFood Blood Builder Iron Supplement Vegan 90 Tablets
I have super sluggish digestion. Mixing 2 teaspoons of acacia in my mushroom coffee assists in keeping things more regular. Prebiotic
Malabsorption is a huge part of EDS. I must take at least this magnesium to keep my levels correct and keep my digestive system moving correctly. I take it before bed with magnesium glycinate as well.
My dietician recommended I use these to rebuild a healthy microbiome while dealing with recurrent SIBO. I have heard Amazon keeps supplements in a hot warehouse, so I often purchase from iherb instead. However, these come packed with ice gel packs in recyclable packaging. You can reuse them, drain them, or water plants with them. Very cool!
For those of us who have malabosrption issues, this is great. I use this to manage my secondary hyperparaythyroidism along with a prescription weekly Vitamin D pill. I do also use biphosphonates to uptake the calcium as I developed osteoperosis in my...
Caltrate 600 Plus D3 Calcium & Vitamin D - 200 Tablets
I can’t garden anywhere near like I used to but it’s still very important to me to create beauty, habitat, food when possible
Perennials preferred (don’t have to replant every year) w a few annuals sown for seasonal interest.
I usually sow late wint...
I was given this cloth eco-dresser for potential review and I LOVE IT!!
It’s perfect for holding makeup/jewelry, medical supplies, tarot and oracle card decks, electric cords/manuals, some medical supplies.
These help take the edge off for our anxious Jackchi or they can also help him sleep more soundly through the night.
I put them in this list because so many of us chronically ill folks have pets/ support animals. 💖
