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A Guide of Must-haves For Hypermobile Ehlers Danlos and HSD
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items I created this guide for suffers of hypermobile ehlers danlos, HSD And even RA. These are the actual items that I have used that have worked for me. I hope that they help you as much as they have helped me.
Sections
7
Books
Braces
hEDS Pillows
Mobility Aids
Joint & Muscle Pain Solutions
Medical Grade Recovery Devices
Books
These are the books that have helped me educate myself, heal and speak to my doctors with more informed ithoughts and ideas. They have also been a huge part of educating my family.
One of the best patient written books for hEDS sufferers.
Guide to Living with Ehlers-Danlos Syndrome
One book, top specialists from every category. This book helped me with my doctors, multiple diagnoses and so much more.
Disjointed: Diagnosis & Management of Hypermobile EDS
If you're like me, PT more than once a week got really expensive. This book has joint strengthening protocol you can do at home. And best part? It works.
Living Life Fully with Ehlers-Danlos Syndrome
Braces
These are the bracing devices that have helped me most.
Hands down, my favorite back relief tool.
IKEEPFIT Portable Cordless Heating Pad Belt
Ice packs for ankles? Yes please. My ankles suffer a lot as I work on my feet… get these!
TheraICE Ankle Ice Pack Wrap for Swelling & Sprained Ankle
The best brace I have seen for elbow pain and bracing.
Incrediwear Elbow Sleeve - Support & Pain Relief
I have these in six colors. The ankle brace with wrap for more support on the tough days.
Sleeve Stars Ankle Brace w/ Removable Strap
This is a great brace for any joint pain in the wrist, trigger finger and more. Small, easy to wear and does its job
Velpeau CMC Thumb Brace for Osteoarthritis - Left Medium
For days that the wrist is really bad, this is my go to.
Bauerfeind ManuTrain Wrist Support Left S1 Black
This is one of my faves for daily typing, writing and more.
OrthoSleeve WS6 Compression Wrist Sleeve Brace
This knee brace is amazing and keeps me good on bad days. It consistenly lives in the top of my brace drawer.
Bauerfeind Sports Knee Support Brace
This SI joint belt is the best I have ever worn. Expensive and totally worth every penny, I am in mine often.
Bauerfeind SacroLoc Back Support Brace Size 7
This is a great shoulder brace in the event you need one! I keep mine on hand regularly.
Copper Compression Shoulder Brace - S/M Black
I have very sensitive skin for longterm wear this is the tape you need.
RockTape Go Gentle Pre-Cut Kinesiology Tape
These are the best insoles I have ever found.
Bauerfeind ViscoPed S Shoe Insoles Pair
If you're like me you live in KT tape! This one is waterproof so lasts a bit longer!
KT Tape Pro Extreme 20 Pre Cut 10in Strips
I love the SI belt for light workouts and light house work days.
SEROLA Sacroiliac Belt SI Joint Support Small
hEDS Pillows
I have each of these pillows and they have been game changers to my sleep and my pain. The amount of time it takes me to get out of bed is cut in a quarter.
One of the best orthopedic pillows i have ever used. It's worth every penny.
Coop Home Goods Adjustable Orthopedic Pillow Queen
My back pain issues don't leave me when I hit my mattress. Once I was used to it, this saved me a 30 minute lower back stretching routine before I could get out of bed!
RESTCLOUD Adjustable Lumbar Support Pillow Memory Foam
If you get a lot of referred hip and back pain while sleeping this pillow helps alleviate a lot and allows me to sleep.
ComfiLife Orthopedic Knee Pillow for Side Sleepers
When I bought this, my family gave me some looks. If you're looking to relieve TMJ pain, Cervical Spine issues and more get one of these. It brings fast relief!
RESTCLOUD Neck & Shoulder Relaxer, TMJ Relief
This is an incredible orthopedic pillow option, it even comes finished in silk so no need to pillowcase it!
HighBeds Cervical Neck Pillow - Side Sleeper
Pregnancy pillows really help with heds pain. When the flares are really bad, I use this.
Momcozy U Shaped Full Body Pregnancy Pillow
Mobility Aids
These two items are game changers for my hands. Everyone should have them.
It got really hard for me to write for a long period of time without extreme hand and joint pan. This pen is a game changer!
PenAgain ErgoSof Pen Ehlers-Danlos Arthritis
Full stop on this one. Everyone needs a jar opener, my hands haven't been able to do that in years! Even pre diagnosis. Get one!
Jar Opener for Seniors with Arthritis, 5-in-1
Joint & Muscle Pain Solutions
With the amount of joint and muscle pain we have, we will take what we can get. These have helped a lot.
Magnesium Lotion Speaks for itself. Get 10!
Epsom-It Muscle Magnesium Lotion 8oz
My go to heating pad on the bad days when there is a lot of area to cover!
King Size 32x24 Heating Pad for Back & Body
Assorted ice packs for different sizes. I also have the large 4 pack
Reusable Hot & Cold Gel Ice Packs - 7 Pack
Accupressure mat is a must in the world of Hypermobile Ehlers Danlos. This one is affordable and high quality and I have loved mine.
Gaiam Acupressure Mat & Pillow Set Grey
This is amazing salve for those achy joints.
Deep Tissue Stick
I tried it. It works. Really well. This joint pain relief cream is top notch
Amish Origins, Deep Penetrating Greaseless Pain Relief Cream, 3.5 fl oz (99.22 g)
The best of the Emu Cream Formula is here! Love this one!
Blue-Emu Original Super Strength Cream 4oz
This is a game changet for neck and shoulder pain
Microwavable Heated Neck & Shoulder Wrap
Medical Grade Recovery Devices
These are the devices that have helped most on this journey. Red light therapy, tens and more
Part of my daily routine is sitting under this like a plant. Its a game changer for inflammation.
INTEO 2-in-1 Red & Infrared Light Therapy Lamp
This is my mat that goes where I go. This is a great solution for whole body recovery red light therapy
Comfytemp 33''x17'' Red Light Therapy Mat
If you really want to invest in red light therapy, than this is going to be the mat for you. We just bought one, and I can tell a noticeable difference.
2026 Medical-Grade Full Body Red Light Therapy Mat
Once you get this you will wonder where its been your entire life.
TENS 7000 Rechargeable EMS Muscle Stimulator
Portable shockwave therapy device actually works
Portable Silent Shockwave Therapy Machine
Comfy Clothes
On days when I want a cuddle but not the weight, the dreamer blanket from comfrt is the best. Warm. Cuddly. and just right when you dont feel great
Dreamer Blanket | Super Soft, Cozy Oversized Blanket | Comfrt
When you suffer from chronic illness a weighted blanket is all the difference on those high anxiety flare days. I love my comfrt cuddlecloud weighted blanket!
Comfrt | CuddleCloud 20 LB Weighted Blanket
When you suffer from chronic illness a weighted blanket is all the difference on those high anxiety flare days. I love my comfrt cuddlecloud weighted blanket!
Comfrt | CuddleCloud 20 LB Weighted Blanket
Another light day favorite- just for cuddles this soft set is amazing for lounging, when you don't feel great or just to be cozy!
Comfrt | Cloud Lounge Tee
Nothing beats a comfrt hoodie and sweatpants more than this hoodie with built in eye mask. Butter soft, and helps me on the hard days!
Airplane Mode Travel Hoodie with Eye Mask | Comfrt