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Life with EDS: Recommended Tools & Adaptations for Hypermobility, Joint Instability & Daily Living

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After being diagnosed with Ehlers-Danlos Syndrome (EDS), I searched high and low for the best tools, supports, and products to help manage daily symptoms like joint pain, hypermobility, fatigue, and muscle weakness. This curated EDS essentials list i...
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Neck Pain

Neck pain essentials for Ehlers-Danlos — soft supports, posture helpers, and comfort tools made for bendy bodies.
 
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The cooling feature has made this a popular choice in our house!
Cervical Neck Pillow, Ergonomic Side Sleeper
 
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Cervical instability is a huge struggle. This has been a major help in managing the pain.
Qwnccet Neck Brace Cervical Collar Pink M
 
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Basic Cervical Collar but it definitely helps when insurance is fighting to not cover one for you!
Laerdel Stifneck Select Adult Adjustable Collar
 
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My first cervical pillow that I still use every night! I recommend it to every person I know with Ehlers Danlos or Neck pain!
Cervical Neck Pillow - Memory Foam Support
 
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Traveling with hEDS can be a huge discomfort but this has decreased that discomfort by a lot!
WEERSHUN 2024 Memory Foam Travel Neck Pillow
 
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When going on trips I bring this pillow to save space and prevent a flair while on vacation!
Cervical Neck Pillow Memory Foam for Pain Relief
 
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This pillow has been a life saver for my cervical instability!
Emircey Orthopedic Memory Foam Neck Pillow

Physical Therapy

EDS-friendly physical therapy tools — gentle strength, stability, and mobility support for bendy bodies.
 
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A great option for neck instability.
Cozyhealth Neck Stretcher & Cervical Traction Pillow
 
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A great kits for PT!
DICYWUDI Flex Therapy Bar & Grip Trainers
 
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This has been life changing for PT!
ZHIAMZ Hand Exercise Webs, Grip Strengthener, 7" Diameter
 
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Great for that chronic pain.
OLsky Deep Tissue Massage Gun, 9 Attachments, 30 Speeds
 
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Great relief for that coat hanger pain!
Neck & Shoulder Relaxer with Upper Back Massage
 
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Great for PT!
Peanut Massage Ball Set for Deep Tissue

Wheelchair

Wheelchair essentials for Ehlers-Danlos — designed for comfort, mobility, and making daily life easier.
 
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These make pushing your wheelchair so much easier and they make your chair more personalized!
Broutery 24in Non-Slip Wheelchair Push Rim Covers
 
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Who says wheelchairs have to be boring! Deck yours out with these spoke covers.
DXMWWTP 180PCS Plastic Spoke Skins Bike Covers
 
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I love these wheelchair arm covers! A great way to make your chair more comfortable.
Wheelchair Armrest Pads 2 Pcs Soft Covers
 
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This has been a great addition to hold my phone, keys, and sunglasses!
OEIPSMK Wheelchair Side Bag, Arm Rest Pouch
 
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This is a great addition to keep all your supplies with you!
XJKLBYQ Waterproof Wheelchair Bag w/Cup Holder
 
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Having a place to put my phone and water bottle has been essential when going on adventures with my wheels!
JOYTUTUS 2-in-1 Wheelchair & Walker Cup Holder
 
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I use this to keep my sun exposure low when I am doing stuff outside!
JANCAN Bicycle Umbrella Mount Holder 20-25mm
 
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No one wants a wet wheelchair! This is actually the best!
Fonakei Waterproof Wheelchair Poncho Navy
 
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As winter months come so do parades and holiday festivities. I will be staying warm with this guy!
GFERTRE Lightweight Lambswool Wheelchair Blanket

Sensory Fidgets

My favorite sensory fidgets — gentle, quiet, and perfect for grounding when your body or brain needs a break.
 
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Sensory fidgets have been so helpful during intense flair ups.
Blulu 50 Pcs Spiky Acupressure Fidget Rings
 
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Sensory fidgets have been so helpful during intense flair ups!
Gersoniel 36 Pcs Gradient Anxiety Sensory Stickers
 
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Sensory fidgets have been so helpful while flair ups are intense!
Little Ouchies Spiky Pain Fidget Keychain
 
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Sensory fidgets have been so helpful during intense flair ups!
Schylling NeeDoh Nice Cube Sensory Toy
 
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Sensory fidgets have been so helpful during intense flair ups!
2-Pack 3D Printed Fidget Spinners - Stress Relief

Accessibility

Everyday accessibility must-haves for comfort, mobility, and ease.
 
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Great for traveling!
3 Pack Medical Alert Tags for Bags & Devices
 
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Chronic hiccups are a battle but this stops them in their tracks.
HICCAWAY Hiccup Straw - Fast Relief, Blue
 
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This is my medical travel bag. I love it. It holds my food up top and my medical equipment below! It also can go on my suitcase and has an additional strap!
LYANYAN Pink Small Travel Duffle Gym Bag
 
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Changing to a monthly pill container has been a lifesaver. It has lessened the chronic illness burnout.
North American Health Monthly Pill Organizer
 
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A great way to watch your tv shows with no neck fatigue! Laying down with it projecting on your ceiling!
Mini Portable Smart Projector 1080P WiFi6
 
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hEDS brings lots of aches and pains so this pill container comes with me everywhere!
Pill Organizer 7 Day Travel Case Pink & 161 Labels
 
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Bringing in groceries has never been easier!
Reusable Grocery Bag Holder with Thumb Grip (Purple)
 
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The struggles of dislocations for shredded chicken is in the past!
Chicken Shredder Tool Twist | Meat Grinder
 
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Sometimes opening jars is just not possible for hEDS! This has helped me a ton.
Talent Star Easy Twist Jar Opener for Seniors
 
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Great way to keep beverages from going flat.
12 PCS Reusable Soda Can Fizz Lid Caps
 
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A wonderful traveling pill container!
AUVON XL Weekly 2x Daily Pill Organizer
 
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A TENS unit is truly a hEDS patients best friend.
Etekcity 4-Channel Rechargeable TENS Unit
 
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GI problems are real! This will be your best restroom purchase.
Foldable 7" Toilet Stool with Non-Slip Mat
 
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Hip pain is the worst! But this pillow makes it a lot easier to sleep!
Pregnancy Memory Foam Pillow for Back & Belly

Plantar fasciitis

My go-to plantar fasciitis favorites — comfort and support made for sore, overworked feet.
 
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If you have plantar fasciitis get this ASAP! This was the best thing my podiatrist recommended.
Tuli's So Soft Gel Heel Cups, 1 Pair
 
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This has helped my plantar fasciitis a TON!
United Ortho Plantar Fasciitis Night Splint
 
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Another great option for plantar fasciitis!
Tuli's Heavy Duty Heel Cups, Shock Absorb
 
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Plantar fasciitis can be so painful. These are a great help!
PowerStep High Arch Pain Relief Insoles
 
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If you are looking for instant relief after being on your feet all day this is your new best friend!
BESKAR Foot Massager Roller for Plantar Fasciitis

Migraines

Migraine relief essentials — soothe pain, block light, and find comfort during attacks.
 
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Perfect for those mid afternoon naps from chronic fatigue!
LKY DIGITAL Sleep Mask 3 Pack, 3D Blackout
 
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Migraines are the worst! But these migraine caps make them a little more manageable.
ZNÖCUETÖD Migraine Relief Ice Pack Hat
 
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Great for when migraines start to affect your eyes!
Silk Cordless Heated Eye Mask, Washable Heat Compress
 
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This little gadget has been so helpful! I always try this first before taking my emergency meds!
Ear Pressure Relief Suction Device, Migraine Relief
 
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Perfect for those cervical migraines and coat hanger pain!
ComfiTECH Cold Cap & Neck Ice Pack Wrap Combo

Braces

EDS-friendly braces — gentle support to stabilize joints without sacrificing comfort.
 
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Great for elbow dislocations and pain!
Reamphy Adjustable Elbow Brace for Night Support
 
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Knee pain is tough. This has helped me so much!
Knee Support Brace with Adjustable Strap
 
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As someone who struggles with joint subluxations this is a huge help!
Fit Geno Adjustable Posture Corrector for Women
 
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SI joint instability is a common problem in hEDS! This belt is a huge help!
Sparthos Sacroiliac SI Hip Belt Relief
 
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One of my favorite braces I own!
Gviipk Quick Lace Up Ankle Brace Support
 
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If you know…you know!
Carpal Tunnel Wrist Brace with Metal Splint
 
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A great walking boot!
Tairibousy Inflatable Air Cam Walker Boot

Heat or Ice

EDS-friendly hot and cold therapy favorites — relief made simple and soothing.
 
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As someone who’s had her fair share of ankle injuries this has been my favorite ice pack I’ve found to date!
BILITOK Reusable Foot Ankle Ice Pack Wrap
 
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My go to for coat hanger pain!
Lenmen Graphene 1Min Fast Heating Pad
 
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Perfect for wrist and ankles to cool you down fast!
Geiserailie 2 Pcs Instant Cooling Ice Tape 3in
 
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Perfect for traveling.
25 Pack Instant Cold Packs for Injuries
 
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These are fantastic for summer days!
TCANG Instant Cooling Ice Packs - 10 Pack

Mobility Aids

My favorite mobility helpers — making daily movement easier on flair days.
 
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Mobility aids don’t have to be boring! Or expensive. This one absolutely adorable.
DMI Foldable Walking Cane, Adjustable 33-37"
 
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This walker has been a great option for my low mobility days!
Loyoda Folding Walker for Seniors, Blue
 
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This wheelchair has been great. The legs have been super helpful when I am having a POTs flair to elevate my legs!
Drive Medical BLS18FBD-ELR Blue Streak Lightweight Wheelchair
 
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Another cute and price friendly cane that I love!
GPTCAMP Lightweight Cushioned Adjustable Cane
 
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Lightweight and cute! Has made life so much easier on those bad flairs to still be able to do stuff around the house!
WALK MATE 3 Wheel Rollator Walker with Seat

Skin Care

EDS-friendly skincare favorites — gentle, effective, and made for delicate skin.
 
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Great for those pesky mosquitoes bites
Itch Relief Patch 100pcs Anti Itch Stickers
 
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Great for doing gardening to protect your skin!
Cut Resistant Farmers Sleeves w/ Thumb Hole
 
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The best way to remove IVs tape, bandages, CGMs, KT tape with the least amount of skin irritation
Uni Solve 402300 Adhesive Remover Wipe, Pack of 50
 
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This has been a great way to protect my skin from adhesives and also keep my CGM or KT tape to adhere for longer.
Smith+Nephew Skin-PREP Protective Film
 
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The ordinary is by far my favorite skin care brand for my sensitive skin. Great products, good cost, and a great company!
The Daily Set
 
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This is my go to for when my face is looking dull and lifeless!
AHA 30% + BHA 2% Peeling Solution
 
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This has helped with my acne so much!
Salicylic Acid 2% Solution
 
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A great morning cleanser!
Remove Makeup & Refresh Skin with Glycolipid Cream Cleanser
 
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One of my favorite under eye serums!
Caffeine Solution 5% + EGCG
 
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Perfect for my uneven skin.
Alpha Arbutin 2% + HA Brightening Serum for Uneven Skin
 
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A easy exfoliator for those with sensitive skin.
Azelaic Acid Suspension 10% for Exfoliation & Even Skin Tone
 
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The perfect lightweight serum.
Hyaluronic Acid 2% + B5 (with Ceramides)
 
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Perfect for those with combo skin!
The Ordinary Natural Moisturizing Factors + HA
 
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A great end of day face wash!
Renewing SA (Salicylic Acid) Cleanser | Face Wash
 
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A great lightweight moisturizing serum.
Transform Your Skin & Hair with 100% Plant-Derived Squalane
 
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Easy at home red light therapy.
Red-Light Therapy Face & Neck Sculpting Wand

Merch

Merch I love — wearable, relatable, and made for those with chronic illness.
 
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Might as well rep it!
Haunted by My Connective Tissue Shirt | Comfort Colors hEDS RA HSD EDS Halloween Tee | Spooky Season Zebra Gift | Fall Ehlers Danlos Tshirt
 
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I love our community!
eds shirt, ehlers danlos zebra shirt, dazzle together, ehlers danlos sweats , eds awareness, eds warrior, rare disease shirt,zebra awareness
 
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Perfect Christmas gift for a fellow Zebra!
EDS Awareness Christmas Shirt We May Bend But We Won't Break Ehlers-Danlos Shirt, Danlos Syndrome Support Gift, Hypermobility EDS Shirt
 
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Wait…it's not?!?!
Chronic Illness Sticker or Magnet | I Thought That Was Normal, Ehlers-Danlos Syndrome Motto | Rare Disease, Invisible, Hypermobile Spoonie
 
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So cute!
Surviving Life with EDS Shirt Long Sleeved hEDS Symptoms Hypermobile Ehlers Danlos Syndrome Shirt Zebra EDS Merch EDS Warrior Clothing
 
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Humor is the best medicine.
Eds Sticker, Ehlers Danlos Sticker, Ehlers Danlos Awareness, Ehler Danlos Syndrome, Die Cut Sticker, Ehlers-Danlos Syndrome Rare Disease Eds
 
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Zebra strong!
Ehlers-Danlos Awareness T-Shirt, Be Kind Be Flexible Tee, Supportive Gift, Health Awareness, Stylish Comfort Apparel
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So cute and comfy:)
Ehlers-Danlos Awareness Hoodie - Unisex Sweatshirt for Support, Gifts, Comfort Wear, Medical Condition Awareness, Cozy Gift
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A perfect gift for a fellow Zebra.
Ehlers-Danlos Awareness Crewneck Sweatshirt | Supportive Gift for Health Awareness, Cozy Unisex Apparel, Soft Sweater, Fundraising [...]
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