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Living with POTS
43
items Postural orthostatic tachycardia syndrome symptoms, support and awareness items.
Sections
7
Helpful Information
Awareness Items
Treatment Centers
POTS Discussions & Forums
Patient Blogs
POTS Books
Helpful Information
Websites and resources.
A comprehensive guide to living life with POTS or dysautonomia.
Recognizing the Symptoms of POTS – Buoy
Get up to date POTS news, research and other related information to help you live better wtih POTS.
Home | Standing Up To POTS
Understanding POTS, MCAS, and hEDS: Tracy's Personal Experience with these Complex Conditions. A video with a personal experience from a center that treats with LDN.
LDN Research Trust
Dysautonomia International does research on POTS and you can donate to them here on this site.
Dysautonomia International: POTS Research Fund
An interesting discussion between POTS and EDS patients on Reddit. Hear other people's experiences that you can relate to.
For those diagnosed with POTS what is daily life like for you?
Dr Diana Driscoll discusses the difference between POTS and dysautonomia in this video.
Is it POTS or Dysautonomia? Dr. Diana Driscoll explains
Awareness Items
Merch to help spread awareness for POTS
A lot of people who have been diagnosed with Lyme disease develop POTS. So here is a shirt with both ribbons for Lyme and POTS.
Lyme Disease and POTS Awareness Ribbons Shirt
Here is a button to help spread awareness for Lyme disease and POTS. They two often go hand in hand.
Dysautonomia and Lyme Disease Awareness Ribbon Pin
October is POTS Awarenses month. Wear this teal ribbon button to help spread awareness or show you have this condition.
Pots Awareness Month Ribbon Button
Here are some POTS awareness tumbler on Etsy. Pretty teal ribbon and designs to bring awareness to this condition that so few understand.
Pots Awareness Tumbler - Etsy
There are some pretty cool t-shirton Amazon to bring awareness to the POTS cause. Witty puns attract attention to this condition.
Pots Awareness
Dysautonomia POTS button with a turquoise Awareness Ribbon and the text Im so tired button.
Dysautonomia POTS Awareness Ribbon Im so tired Button
POTS Warrior fox sleeping on turquoise awareness ribbon notebook. Pretty teal and orange background.
POTS Warrior | Dysautonomia Awareness Ribbon Notebook
A POTS awareness tumbler with a turquoise ribbon with a cat napping at the bottom of it. Pretty teal background.
POTS Warrior | Dysautonomia Awareness Ribbon Insulated Tumbler
Pretty pink and teal POTS/dysautonomia coffee mug for a friend or someone who has POTS.
POTS Warrior | Dysautonomia Awareness Ribbon Mug
Treatment Centers
Where can I go to get help with POTS?
This POTS treatment center is located in Dallas, Texas and specializes in treating dysautonomia.
The POTS Treatment Center
I listed this POTS site here because they have a directory to help you find a POTS specialist near you.
Dysautonomia Support Network
John Hopkins has several POTS treatment centers in Maryland. They treat both adults and children at these centers.
Postural Orthostatic Tachycardia Syndrome (POTS) Program
UW Madison has a treatment center for children. So if ou have a child going through this you might want to reach out to the pedicatric POTS ward here.
Postural orthostatic tachycardia syndrome (POTS)
The neurologic centers treat dysautonomia in Florida, Wisconsin and Illinois. You can book an appointment online on this website.
Finding the Right Dysautonomia Treatment Center|Neurological Wellness Institute
Here is a good article for parents of a child with POTS. Helpful information from Children's Hospital of Chicago.
Living with Postural Orthostatic Tachycardia Syndrome (POTS)
POTS Discussions & Forums
You are not alone, talk to other patients dealing with POTS too.
Here is a good POTS forum where you can discuss symptoms and treatments with other people who suffer from POTS too.
Dysautonomia Discussion
Here is another place you can discuss your POTS symptoms, treatments and just vent or ask questions with other patients like you.
POTS
A discussion on Quora about what it is like to live with POTS. A condition that causes rapid heratbeats and lower blood pressure.
What's it like to live with postural orthostatic tachycardia syndrome?
Patient Blogs
Patients trying to help other patients.
This is my own blog. I have been diagnosed over the years with POTS, Lyme, Fibro, EDS and some other fun stuff. Here is my daily trials and what I do to try to make things better.
WTFLyme
Here a young patient with POTS blogs about her daily life with POTS and she tries to spread awareness.
All Things Tachy
A POTS sufferer chronicals the treatment they have tried to help them feel better. What works for them and what didn't. We are all different but it's interesting to read and we might learn something new.
MUSINGS OF A DYSAUTONOMIAC
A very interesting blog from Ilana Jacqueline about the navigating through the corrupt medical system when you are chronically ill. She touches on medical gaslighting and how to get the care you need.
About Ilana
Here is a list of patient blogs from people who are dealing with POTS. If you are feelign alone, you are not, just start reading one of these blogs to see so many people are sadly going through these same struggles.
POTS Blogs | Standing Up To POTS
Here is some inspiration for you. Stories of hope and recovery and people who manage their POTS symptoms and got back to living.
Dysautonomia International: Stories of Hope & Recovery
POTS Books
Here are some books to help the patient, caregiver, friend or family member learn more about POTS.
A book written by Kelly Freeman for doctors, patients or family members of people who suffer from POTS or dysautonomia disorders.
The Dysautonomia Project: Understanding ANS
This books full of information for those who suffer from POTS. Frederick Earlstein has written this medical education guide to provide an understanding of Dysautonomia, POTS Syndrome including POTS and Associated Disorders, signs and symptoms, causes and treatment, living with POTS, research and resources, and m...
Dysautonomia & POTS Syndrome: Diagnosis & Treatment
A book for people who like to use food and diet to control their chronic illnesses such as POTS>
POTS SYNDROME DIET COOKBOOK: FOR BEGINNERS ...
A book written by author Rochelle Berman, a wellness enthusiast, who teaches the whole mind-body connection and uses that to help you heal.
Vagus Nerve Reset Essentials Guide
"Tired All the Time: Defeating Dysautonomia" is a comprehensive guide to understanding and managing your symptoms to help you live better.
Defeating Dysautonomia: A Practical Guide
Here is a journal to help you track your symptoms, figure out what sets your symptoms off and just keep track of your daily life with POTS.
Record Triggers, Symptoms, Pain & Meals
POTS & Other Conditions
Other conditions that are related to POTS.
Great patient discussions on things such as Covid causing POTS, anxiety with dysautonomia and other related topics.
Autonomic Dysfunction | Heart Health | Forums
Here they talk about the conditions that co-exist with POTS such as Lyme, EDS and Covid.
Coexisting Conditions
The POTS and Lyme connection is real. I was diagnosed with both along with EDS and it is a real struggle every day.
The Lyme + POTS Connection: Symptoms, Diagnosis + Strategies to Feel Better | RawlsMD
There are a lot of articles that link hypermobility disorders and POTS. Which ones have you been diagnosed with? So far, I have been dx with POTS, Lyme, Hypermobility Disorder.
Ehlers-Danlos syndrome and POTS: Link and treatment
Chronic Fatigue Syndrome and POTS article that discusses the symptoms or each disorder and how they overlap.
Chronic Fatigue Syndrome (ME/CFS) and POTS
There is often a link between Fibromyalgia and POTS too. They are two different conditions that often times overlap.
POTS and fibromyalgia: Link, diagnosis, and more
Research paper on the link between mast call activation disorder and POTS.
Evaluation of the relationship between mast cell activation and postural orthostatic tachycardia syndrome in children and adolescents