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Living with Ehlers-Danlos Syndrome: Info, Support & Community
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items These are the websites, blogs, podcasts, and support groups I turn to when navigating life with Ehlers-Danlos Syndrome (EDS). Whether you're newly diagnosed or deep in the journey, this list offers trusted resources for understanding symptoms, findin...
Sections
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Learn About EDS: Symptoms, Diagnosis & Management
Living with EDS: Real Stories & Tips
EDS Support Communities: Online & Local
🛠️ Comfort Tools That Help Me Manage EDS
Learn About EDS: Symptoms, Diagnosis & Management
Offers comprehensive information on EDS, including symptoms, diagnosis, and management.
The Ehlers Danlos Society
Great information and free webinars about EDS
EDS Awareness Chronic Pain Partners
The latest research on Ehlers-Danlos Syndrome
Home - Ehlers-Danlos Syndrome Research Foundation
Say goodbye to wrist strain and hello to effortless kitchen wins. This compact electric jar opener is designed for arthritic hands, weak grip, or anyone tired of wrestling with stubborn lids. With one-touch operation and auto shut-off, it opens jars ...
INSTACAN Electric Jar Opener White High Torque
Living with EDS: Real Stories & Tips
Blog about living with EDS and MCAD with links to resources
Oh TWIST Home - Discover what could be making you so tired too!
OT and coach with EDS gives some great advice
Janine on TikTok
Mostly funny videos about living with EDS
Allison Tennyson on TikTok
Dr. Grunch in the Atlanta area is one of my favorite social media follows and she highlights EDS in her post today as part of Chronic Illness Awareness month
Dr. Betsy Grunch - Ladyspinedoc
Podcast about living with Chronic Illness
Invisible Not Broken Chronic Illness Network — Invisible Not Broken Invisible Illness Podcast
EDS Support Communities: Online & Local
Excellent support group to discuss issues surrounding Ehlers Danlos Syndrome
Ehlers Danlos Syndrome Support Group (freely discuss your...
Ehlers Danlos Support Facebook Group
Ehlers Danlos Syndrome | Facebook
Facebook Support Group for living with EDS in the PNW
Washington and Pacific Northwest EDS Ehlers-Danlos Support | Facebook
🛠️ Comfort Tools That Help Me Manage EDS
These hospital-grade compression stockings offer firm 20–30 mmHg support to help manage circulation issues, swelling, and fatigue—especially helpful for EDS, POTS, or long recovery days. The open-toe design adds breathability and comfort, while the s...
Amazon Basic Care Compression Stockings 20-30 mmHg Thigh-High Open Toe
These stylish calf-length compression socks offer gentle 15–20 mmHg support—ideal for managing mild swelling, fatigue, and circulation challenges common with EDS and POTS. Made with Bombas’ signature softness and a stay-put fit, they’re perfect for e...
Women's Everyday Compression Socks (15-20mmHg)
This versatile kit includes 6 graduated oval splints and 4 compression sleeves designed to support hypermobile, arthritic, or injured fingers—including thumb, index, middle, ring, and pinky. Ideal for EDS-related joint instability, trigger finger, or...
10Pcs Oval Finger Splints & Sleeves Kit
Designed to reduce wrist strain and muscle fatigue, this sculpted trackball mouse offers smooth thumb control and five adjustable DPI settings for precision and comfort. Ideal for EDS, arthritis, or anyone navigating joint instability, it keeps your ...
Wired RGB Trackball Mouse, Ergonomic, 5 DPI, USB-C/A
This powerhouse massage gun is built for real-life relief—especially if you struggle with joint instability, muscle tension, or hard-to-reach pain zones. With 5 adjustable angles and a retractable metal handle (up to 12.6"), it’s perfect for solo bac...
NAPRE Foldable Deep Tissue Massage Gun 32 Speeds
Designed to restore your neck’s natural curve in just 10 minutes a day, this foam-based stretcher offers vertical and horizontal support plus gentle curvature traction. Ideal for TMJ pain, tension headaches, and posture correction, it cradles your ne...
RESTCLOUD Neck & Shoulder Relaxer, TMJ Relief
Affordable and effective, this wrist brace offers customizable compression and stabilizing support for sore, weak, or hypermobile wrists. With an anatomical thumb opening and adjustable splints, it’s designed for comfort and alignment—especially help...
Equate Wrist Support, Adjustable, Black, One Size