
These are the websites, blogs, podcasts, and support groups I turn to when navigating life with Ehlers-Danlos Syndrome (EDS). Whether you're newly diagnosed or deep in the journey, this list offers trusted resources for understanding symptoms, finding community, and exploring real-life strategies for chronic pain management, fatigue, and mobility challenges. I’ve included platforms that blend medical insight, personal stories, and comfort-first support—because living with EDS is complex, and you deserve tools that meet you where you are.