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💙 Living Well with Sjögren’s Syndrome
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items A comfort-forward guide to navigating dryness, fatigue, and flare-ups—blending expert resources, supportive communities, and everyday relief tools. Whether you’re newly diagnosed or managing ongoing symptoms, this curated collection offers clarity, c...
Sections
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🔍 Informational Resources
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🤝 Support Communities
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đź›’ Relief Tools & Comfort Picks
🔍 Informational Resources
Understand your symptoms and advocate for your care with credible, patient-first information.
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A leading nonprofit offering survival guides, clinical trial updates, and a trusted product directory.
Sjögren's Foundation
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A deep dive into systemic complications and diagnostic strategies from one of the top U.S. research hubs.
Sjögren’s Disease Information : Johns Hopkins Sjögren’s Center
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Patient-created site with printable guides and lifestyle tips tailored to real-world living.
Sjogrens Syndrome: RESOURCES | sjogrensadvocate
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A concise and clinical snapshot of causes, symptoms, and care options.
Sjogren's syndrome - Symptoms and causes
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NIH-backed research and links to other rheumatic disease resources.
NIAMS Sjögren’s Resources
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This insightful video from Dr. Kara Wada explores the often-overlooked link between MCAS and Sjogren’s Syndrome, diving deep into how mast cells, gut health, and neuroinflammation may shape autoimmune symptoms. If you’ve ever felt dismissed or misdia...
Unmasking Mast Cell Activation Syndrome (MCAS), The Gut-Brain Connection and Its Impact on Sjogren's
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This YouTube playlist is a goldmine of clear, compassionate insights into Sjögren’s Syndrome. Dr. Girnita breaks down everything from early warning signs and brain fog to dry mouth remedies, vitamin support, and even hormone balancing tips. With over...
🎥 Sjogren Syndrome by Dr. Diana Girnita – Rheumatologist OnCall
🤝 Support Communities
Connect with others who truly understand—because support shouldn’t feel like a solo mission.
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An active, friendly peer-to-peer space hosted by the Sjögren’s Foundation.
Sjogren's - Sjögren's Support Community - Inspire
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Over 65 local, virtual, and international groups dedicated to encouragement and resource sharing.
Support Groups & Networks
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Thoughtfully moderated discussions with chronic illness advocates and long-haul warriors.
Smart Patients Sjögren’s Forum
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A mix of news, research updates, and personal stories with links to active support groups.
Support Groups for People with Sjogren’s Syndrome – Sjogren's...
đź›’ Relief Tools & Comfort Picks
Make daily life feel a little lighter with products designed to soothe, restore, and support.
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A handheld steamer that releases a gentle, heated mist to moisturize tired, strained eyes—perfect for screen fatigue and seasonal dryness.
Eye Steam Sprayer - Heated Mist for Dry Eye
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Gentle formula that hydrates without irritation or buildup—especially great for frequent use.
Systane COMPLETE PF Dry Eye Drops 0.34oz 2ct
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Trap humidity around the eyes to reduce dryness and protect from wind, dust, and air conditioning.
cosycare Dry Eye Relief & Anti-fog Glasses
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Heated mask that helps loosen clogged glands and support tear production naturally.
MyHalos® Steam Eye Mask for Dry Eyes & Styes
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Help stimulate saliva and freshen breath without the sting
Oracoat XyliMelts for Dry Mouth Night Time or Day - Moisturizing Dry Mouth Adhering Discs, Sugar Free with Xylitol, 100 Count, Mild Mint Flavor, 8-Hour Relief
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Adds moisture to the air while you sleep—especially helpful during winter months or in dry climates.
LEVOIT 2.5L Top Fill Cool Mist Humidifier
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Rich in ceramides and emollients to deeply hydrate sensitive or itchy skin.
CeraVe Moisturizing Cream for Dry Skin 19oz
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Vaginal moisturizers that offer long-lasting hydration with minimal irritation.
Replens Vaginal Moisturizer, 8ct w/ Applicator
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I don’t take a single soak without this: Village Naturals Therapy Comfort Foaming Bath Soak in Blueberry Citrus. It’s like a hug for sore muscles and tired nerves—infused with Arnica, Epsom salt, and skin-loving oils that actually help me feel human ...
🫧 My Every-Bath Essential
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This plant-based omega supplement is a spoonie-friendly alternative to fish oil, made from sustainably sourced algae and free from carrageenan, heavy metals, and ocean contaminants. It’s one of the most reviewed vegan DHA options out there, and inclu...
Vegan Omega 3 DHA Algae Oil, Plant Based
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This all-in-one Biotene kit is a lifesaver for dry mouth relief, especially during flares or medication side effects. It includes a gentle oral rinse, a portable dry mouth spray, and a soothing moisturizing gel—perfect for layering support throughout...
Biotene Dry Mouth Rinse, Spray & Gel Kit