Leisha Craft

Chronic illness (Hypermobile Ehlers Danlos Syndrome, POTS, MCAS, autoimmune, fibromyalgia, IBS, etc) changes the way you pack your purse to go about your day! Because you never know what symptoms you're going to encounter. If it gets too heavy to carry, pick up a bag that attaches to your Rollator, or pack a kit to keep in your car.

Here are my favorite items for the extra support that bendy bodies with a myriad of symptoms require. From joint pain and fatigue, to POTS flares and heat intolerance, to random allergic reactions to whatever - these are some ways I've found to make life a little easier.

Proper diagnosis and treatment can take a while with a rare condition like a CSF leak. These are the essentials that helped me make it through that time.

We have a lot of small adaptations that we've learned to use to support these kids living life as normally as possible with EDS and POTS. Some ideas are for home, some are for extra support at school.

If you have kids who love dance but also struggle due to hypermobility, here are some tools we use to keep them doing what they love while minimizing risk of injury.