Proper diagnosis and treatment can take a while with a rare condition like a CSF leak. These are the essentials that helped me make it through that time.
This may seem silly, but it really reduced symptoms for me to not have to bend over or crouch down to get something and then stand back up again.
Grabber Reacher Tool, 32" Grabbers
When you're living with daily headaches, having an easy option for immediate noise reduction is helpful!
Loop Earplugs
Ice packs can help with migraines, also when overheating is also an issue, which I had frequently due to POTS. I love this specific pair.
ComfiTECH Cold Cap & Neck Ice Pack Gel Combo
Having a lightweight rollator with all-terrain wheels is so valuable to maintain your ability to get out into the world and do some things! It's helpful to try and be socially connected on the better days, even when it's hard.
Carbon Overland - byACRE Shop
My favorite KT tape for a short piece placed across my mid-back to help reduce the CSF leak symptoms.
Kinesio Tex Gold Tape
When the brain fog is seriously bad, having a large dry erase calendar on the fridge can really help keep track of things.
19x13 Magnetic Whiteboard for Fridge - Weekly Calendar & Meal Planner
For days when you don't have the energy to shower but want to look like you tried.
Medcosa Shampoo Caps No Rinse
Another option for the days when, if you shower, that will be enough to send you right back to bed.
Scrubzz Disposable No Rinse Bathing Wipes
Hands free shoes are a must when bending over and standing up again will make your head hurt.
Women's Siena - Pink Lemonade/Purple Orchid
Cute clip on tissue holders to put on a purse for intracranial leaks!
Handmade Clip-On Kleenex Holder with Tissues | Travel Tissue Case Keychain | Purse & Backpack Accessory
If you're going to spend a lot of time lying down, it's best to have everything you need nearby.
Couch Bed Caddy Organizer With Cup Holder
An adaptable way to place a tablet where you can see it while lying down.
Adjustable Bed Tablet Holder Rotatable Long Arm Metal Desktop Tablet Bracket Mounts Clamp for 4.7-10.2inch for Tablet
When laying down flat helps reduce symptoms, a recliner can provide a comfortable spot out of bed.
MCombo Lay Flat Dual Motor Power Lift Recliner Chair Sofa with Heat and Massage
Free printable information card to explain what you're living with and request appropriate accommodations.
CSF Leak Medical Accommodations Card
For shaving legs without bending over!
EASACE Razor Extension Shaver Handle
Get a portable chair that reclines, can lay fully flat if you need it, and elevates your legs. Bring to gatherings and events!
